October consultant discussion

 Round 4 passed without incident, but as I'm feeling steadily worse, I didn't post afterwards. I've just had a long chat with the consultant, and he seems happy with the progress. 

I had a CT scan yesterday to see if the splenomegaly has improved, but the results aren't through yet. 

He confirmed that it's perfectly normal to feel steadily worse as the treatment progresses, as the effect of the chemo is cumulative, with most of the damage being done in the first two rounds, and that it will take several months to get back to my energy levels before my diagnosis. And they weren't that great before that, following the Covid vaccine making my ME/CFS so much worse in 2021. My hope for getting back to normal energy levels is pretty remote now.

Let's hope the chemo brain improves, as I hate being more than usually stupid.

So I've got round 5 on Monday, then round 6 4 weeks later, then another discussion in January, I'm staying on all the pills for at least a month after the chemo finishes. I'll get blood tests every 3 months for the foreseeable. He says it's unlikely to flare up for years rather than months, so we shall see.

Now for some breakfast and a steady diet of ER, House and the West Wing...

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