First round 1st July (updated)

 Sadly I got off to a rather bumpy start. I had five hours of infusion as an outpatient with rituximab finishing at 5 pm on Monday, but then I had a strong adverse reaction, so was rushed to A&E, where I was treated until three in the morning, and then moved into an inpatient ward. They gave me all sorts of drugs and blood transfusions,

They told me to take a day off to recover on Tuesday, and then on Wednesday  I had my first dose of Ben(damustine) followed by 8 hours of saline infusion.

On Thursday I had the second dose of Ben, followed by 16 hours of saline infusion. I was really hoping to go home, but they said I would have to sign a form saying I was leaving without medical consent.

It's now Friday evening and I'm home! Feeling very rough, but that is good as it means it is finding stuff to attack.

I now have the weekend off, and will go back on Monday morning for a check up.

My immune system is being steadily broken down, so I can't go out (apart from to the hospital) or have any visitors. Sorry.

Comments

  1. Anonymous27 June 2024 at 19:05

    Love you & so pleased it’s happening quickly!! Thank you darling for the update xxxx

    ReplyDelete
  2. Oustinfi30 June 2024 at 14:23

    This comment has been removed by the author.

    ReplyDelete
  3. Prue7 July 2024 at 12:51

    Ooh Andrew - that’s good it’s having effect, but a huge ordeal.. Sorry I missed this & messaged you. Lucy’s not been well, & so staying with me. Sending masses of love ❤️

    ReplyDelete

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